Mar 24, 2013 10:50 AM
My name is Claire Ross. I’ve been with my husband Michael, 29, for over seven years. Michael has Motor Neurone Disease. We’ve been through a lot together since the very beginning… through the early signs, tests, trial treatments, diagnosis and procedures. I’ve started this blog to share our past experiences over the years, as well as new ones as they unfold.
We’ve always been pretty private people. The thought of putting this all out there for anyone to see is insanely out of character for me. I’m not sure if I expect anyone to even read this. Even if they did, I probably wouldn’t know if it had any effect on things… Naturally I would think, who would want to listen to my sob story, what makes it any different from all the other hardships people face? But I suppose at the end of the day, if just one person understands the impact that Motor Neurone Disease can have on people’s lives, or even finds out what it is… then it’s worth something.
I think there’s an air of mystery around MND. It’s not as widely talked about as other deadly diseases, yet just as potent. The average person lives only two years from diagnosis. That’s not a lot of time to get your head wrapped around having the illness in the first place, let alone watching it take over your body until you die. To this day, there is no cure. I know I’m only one person, but I hope by sharing my story, people can gain deeper insight into what really goes on behind closed doors…
Continue reading our journey here.
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